Patient and Family Advisory Council (PFAC) Volunteer
PFAC members contribute their patient and family/caregiver perspectives to help inform and improve the patient and caregiver experience. Participation may be in person, by phone, or through electronic means, and may involve a one-time activity or ongoing involvement with a project team or committee. Activities may include:
Attending monthly PFAC meetings
Providing input on the design or improvement of programs, services, policies, or processes
Collaborating with staff on research design, implementation, or communication
Offering perspectives to inform legislative or public policy efforts related to cancer care
Reviewing and providing input on patient education materials written at approximately a 6th-grade reading level
Reviewing or helping to draft patient and family communications
Presenting or co-presenting to staff, or at conferences and events, to share the patient and family perspective
Writing blogs or other content to share personal, cancer-related experiences internally and externally
Background and Qualities of a PFAC Member
PFAC members are individuals with lived experience of care at Dana-Farber Cancer Institute and/or Boston Children’s Hospital, either as a patient or as a caregiver. Members are:
- At least one year past initial diagnosis (for patients), or at least one-year post-bereavement (for bereaved caregivers).
- Have experience with inpatient and/or outpatient oncology or blood disorder care at DFCI and/or BCH.
- For caregivers- are a family member, loved one, or friend (at least one year post initial diagnosis) who accompanied the patient to most appointments at DFCI/BCH and provided care and support at home.
- Interested in patient advocacy and feel comfortable sharing their perspective as a patient or caregiver and using their story in service of advocating for others not at the table.
- Able and willing to share perspective and constructive feedback in a respectful and professional manner
- Committed, reliable, and flexible.
Commitment:
- PFAC members must commit on average to at least 5-10 hours per month toward all PFAC activities, including attending monthly meetings, has access to and is comfortable using email, and has the ability to download and review electronic materials.
- Coaching, tech support and access, and interpreter services are available as needed to help and support members function successfully.
- This role has a 6-year term limit beginning from first PFAC meeting as a member; each year PFAC members sign an annual letter of intent affirming their commitment to serve as a PFAC council member in the following year.
At Dana-Farber Cancer Institute, we work every day to create an innovative, caring, and inclusive environment where every patient, family, and staff member feels they belong. As relentless as we are in our mission to reduce the burden of cancer for all, we are equally committed to diversifying our faculty, staff, and volunteers. Cancer knows no boundaries and when it comes to hiring the most dedicated and diverse professionals, neither do we. If working in this kind of organization inspires you, we encourage you to apply.